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RESEARCH 

The UCSD Adult Cystic Fibrosis Clinic has a long tradition of providing state of the art medicine

CYSTIC FIBROSIS FOUNDATION PATIENT REGISTRY

More than 30 years ago the Cystic Fibrosis Foundation started a Patient Registry to track the health of patients with cystic fibrosis across the United States.  Today information from more than 20,000 patients who receive care at a Cystic Fibrosis Foundation-accredited center is collected and added to the Patient Registry database yearly.  This information is collated into graphs and trends and sent to each of the centers so that physicians specializing in Cystic Fibrosis (CF) can improve the quality of care of their patients.

The UCSD Adult Cystic Fibrosis Center is committed to the Cystic Fibrosis Patient Registry.  We are currently requesting the involvement from all of our patients to be enrolled in this study.  Participation in the Patient Registry helps physicians not only improve the quality of life of those with cystic fibrosis, but also helps in reaching the goal of finding a cure.  To find out more please contact (858) 657-7073.  

INHALED AZTREONAM STUDY

We are currently involved in a study on an inhaled drug by the name of Aztreonam.  This is an old drug that has been around for years but is usually given through an IV.  Patients must meet certain criteria to be eligible for this study.

Participants in the trial are asked to perform (2) nebulized treatments of the drug each day.  We periodically monitor spirometry and sputum studies.  There is a participant reimbursement fee.  Those interested in being involved with the study should contact Bobbie Munden at 619/543-7963 or Julie Wood, MD at 858/657-7145.

Please continue monitoring this web site for further research projects..